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  2. PROMIS Pediatric ¨C Depressive Symptoms

PROMIS Pediatric ¨C Depressive Symptoms

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Purpose

Domain focused, self-reported and parent-reported measures of global, physical, mental, and social health for adults and children in the general population and those living with a chronic condition.

Link to Instrument

Area of Assessment

Mental Functions

Assessment Type

Patient Reported Outcomes

Cost

Free

Actual Cost

$0.00

Cost Description

Free for short form, $499.99 annual subscription for NIH Toolbox

CDE Status

Availability

The instrument is freely available here: .

See  for currently available PROMIS Bank CDE Details.

Classification

Supplemental - Highly Recommended: Stroke, Congenital Muscular Dystrophy (CMD) in studies of psychosocial functioning, quality-of-life, outcome, and long-term adjustment studies.

 Supplemental: Traumatic Brain Injury (TBI), Amyotrophic Lateral Sclerosis (ALS), Chiari I Malformation (CM), Epilepsy, Friedreich's Ataxia (FA), Headache, Huntington's Disease (HD), Mitochondrial Disease (Mito), Multiple Sclerosis (MS), Myasthenia Gravis (MG), Neuromuscular Diseases (NMD), Duchenne/Becker Muscular Dystrophy (DMD/BMD), Spinal Muscular Atrophy (SMA), Parkinson's Disease (PD), Stroke, and Spinal Cord Injury (SCI), and Unruptured Cerebral Aneurysms and Subarachnoid Hemorrhage (SAH)

Exploratory: Cerebral Palsy (CP) Myotonic Muscular Dystrophy (DM) and Facioscapulohumeral Muscular Dystrophy (FSHD) and Sport-Related Concussion (SRC)

*Headache specific subtest recommendations : Anxiety (Adult/Pediatric), Depression (Adult/Pediatric), Sleep (Adult)

Populations

Pediatric and Congenital Conditions

Key Descriptions

  • Usually 4-12 items for each section domain depending on which type of test is being
    performed (Short Form, CAT, or Profile)
  • Minimum and maximum scores depends on the form being used
  • Scoring: Item-levels are scored numerically for an individual's response to each question. PROMIS recommends the best way to find the total raw score is using the free HealthMeasures Scoring Service (https://www.assessmentcenter.net/ac_scoringservice) or a tool that can automatically
    calculate scores. Scores can also be added up by hand to find the total raw score. Then the raw score is converted to a T-score using the table in the Appendix of the link below. This standardizes the score with a mean of 50 and standard deviation of 10. Being above or below the standard deviation could be desirable or undesirable based
    on the domain being measured.
  • Higher scores means more of the concept being measured. Example = more depressive symptoms.

Number of Items

Pediatric
? Item bank: 14
? Short form: 8
Parent proxy report for pediatric patients
? Item bank: 13
? Short form: 6
Computer adaptive tests (CAT)
Items dynamically selected for administration from the item bank based on respondent¡¯s previous answer. Usually between 4-12 items or questions.

Time to Administer

5 minutes

Required Training

No Training

Age Ranges

Preschool Children

2 - 5

years

Child

6 - 12

years

Adolescent

13 - 17

years

Instrument Reviewers

Holly O¡¯Hearn, SPT

Jensyn Bradley SPT, ATC, LAT

Chi-Lun Chiao, SPT

Holt McPherson, SPT

Kenna Peters, SPT

Corinne Woodbine, SPT

Duke University, School of Medicine, Division of Physical Therapy.

Considerations

  • PROMIS measures can be used in the general population and with adults and pediatric populations with a chronic condition(s)
  • PROMIS measures have a larger range of measurement than most conventional measures, decreasing floor and ceiling effects as a result
  • PROMIS measures have fewer items than conventional measures, thereby decreasing respondent burden. When used as computer adaptive tests, PROMIS measures usually require 4-6 items for precise measurement of health-related constructs
  • Translations: The assessments are available via PDF in Spanish and can be obtained in other languages by contacting translations@Healthmeasures.net

Pediatric and Congenital Conditions

back to Populations

Minimally Clinically Important Difference (MCID)

Nephrotic Syndrome: Selewski et al, 2017; n=127; Age Range=8-17; Severity= active nephrotic syndrome

  • MID = 3

Normative Data

Nephrotic Syndrome: Selewski et al, 2017; n=127; Age Range=8-17; Severity= active nephrotic syndrome

  • Baseline
    • Mean score (n=127): 49.7 (9.3)
  • Event visit [occurred after remission or 3-months post baseline]
    • Mean score (n=112): 45.2 (9.9)
  • Final visit [12-months post-baseline]
    • Mean score (n=90): 46.2 (9.6)

Test/Retest Reliability

General population: (Varni et al, 2014; n=331; age= 12.1; General Pediatrics)

  • Excellent test-retest Reliability for short form (ICC = .76)
  • Excellent test-retest Reliability for CAT (ICC = .77)

Internal Consistency

General population: (Varni et al, 2014; n=331; age= 12.1; General Pediatrics)

  • Excellent internal consistency (¦Á=.85-.86)

Childhood-Onset Systemic Lupus Erythematosus (SLE) Jones, 2017; n=100 (at visit baseline); Age=15.8?(2.2)

  • Excellent internal consistency for PROMIS-Short Form pooled across all visits: (Cronbach¡¯s Alpha = 0.96)

Construct Validity

Pediatric Traumatic Brain Injury

(Bertisch et al, 2017)

Child Version: Convergent

     PedsQL Emotional r=?0.81

PROMIS ratings strongly correlated

     SDQ Hyperactivity r=0.53

PROMIS ratings strongly correlated

      SDQ Emotional r= 0.73

PROMIS ratings strongly correlated

Child Version: Discriminant

     PedsQL Physical r= ?0.55

PROMIS ratings strongly correlated

 

Nephrotic Syndrome: Selewski et al, 2017; n=127; Age Range=8-17; Severity= active nephrotic syndrome

    • Poor correlation with Peds QL Physical Functioning (¦Ñ=-.46)
    • Adequate correlation with Peds QL Emotional Functioning (¦Ñ=-.55)
    • Poor correlation with Peds QL Social Functioning (¦Ñ=-.44)
    • Poor correlation with Peds QL School Functioning (¦Ñ=-.39)
    • Adequate correlation with overall health-related QOL (¦Ñ=-.57)

Childhood-Onset Systemic Lupus Erythematosus (SLE)

Jones, 2017; n=100 (at visit baseline); Age=15.8?(2.2)

 

 

Bivariate correlation (rpool) between pediatric PROMIS short forms and legacy measure subscalesa

Legacy measures

Depressive symptoms

SLEDAI©\2°­

0.03

BILAG

?0.03

MD©\²µ±ô´Ç²ú²¹±ô

0.07

SDI

?0.07

Functional Disability Inventory

0.42

PedsQL©\³Ò°ä

  

-Summary score

?0.64

-Physical function

?0.48

-Emotional function

?0.72

-Social function

?0.49

-School function

?0.53

PedsQL©\¸é²Ñ

  

-Summary score

?0.62

-Pain and hurt

?0.47

-Daily activity

?0.41

-Treatment

?0.56

-Worry

?0.43

-Communication